All’Italia serve un Piano Einaudi
[quote]La sensazione è che il Documento di economia e finanza 2024 (Def), “snello e asciutto”, abbia avuto un unico significativo effetto: lasciare con la penna a mezz’aria i tanti che si preparavano a versare fiumi di inchiostro su questa o quella cifra di questa o quella tabella. La realtà è che non c’era e non […]
L'articolo All’Italia serve un Piano Einaudi
Informa Pirata: informazione e notizie
Consigliamo di ascoltare questi due programmi di ByoBlu andati in onda giovedì 11 aprile, in occasione del 5° anniversario dell’incarcerazione di Assange, molto completi e soprattutto che fanno delle riflessioni molto acute sulle recenti affermazioni di Joe…
https://t.me/ppInforma/6953Per una questione di chiarezza, ricordiamo che Byoblu è un canale che prati
Threads su Mastodon e il luminoso futuro del Fediverso
«Questo è il mio viaggio che è iniziato come un esperimento per vedere come sarebbe stato il mio feed di Threads su Mastodon e si è concluso con la scoperta di esperienze che sono andate ben oltre le mie aspettative.»
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#ChatControl 1.0: Pirates condemn extension by Parliament
Today, the European Parliament adopted the trilogue deal on the extension of the controversial, error-prone voluntary bulk scanning of private messages and photos for suspected content by US internet companies until April 2026. This extension, known as #ChatControl 1.0 or interim ePrivacy derogation regulation, was now carelessly adopted in a fast-track procedure before the European elections. Initially, the European Parliament majority aimed to extend the regulation by only 9 months to swiftly transition to targeted surveillance of suspects and a more effective approach to protecting children. However, today’s deal extends the status quo by more than twice the period originally envisioned, prompting criticism from Pirate Party MEPs, who have long advocated against this unprecedented mass surveillance tool.
Patrick Breyer, Member of the European Parliament for the German Pirate Party, comments:
“The EU Parliament’s decision to extend blanket chat control contradicts its stated goal of protecting fundamental rights. Moreover, this deal fails to provide a stronger and court-proof protection against child sexual abuse. Victims deserve better. Bulk scanning makes no significant contribution to saving abused children or convicting perpetrators of abuse. Instead, it exposes thousands of minors to potential criminalization, overburdens law enforcement, and facilitates arbitrary private justice by internet companies. As a Pirate, I am working to stop the illegal bulk chat control scanning in court. We will be watching every move of the EU Council which aims at adopting the extreme dystopia of mandatory chat control 2.0 to destroy digital privacy of correspondence and secure encryption.”
Marcel Kolaja, Member and Quaestor of the European Parliament for the Czech Pirate Party, comments:
“Child sexual abuse on the Internet is a severe problem that we should be addressing with all urgency. Unfortunately, the debate on this important issue has become an endless battle for our privacy. As a result, we still do not have an effective framework for the protection of children. Something that we should have put in place years ago. Instead, the Commission is doing unsystematic steps by giving the companies that have historically treated our private data the worst the power to invade our privacy and read all our online messages however they please. They say it’s with children’s safety in mind. However, those internet services have been snooping into people’s private communications for years now and we have seen no convincing evidence that this has actually helped to anything. To think that extending this exemption, the legality of which I strongly doubt, will do more good than it will do harm is naïve to say the least.”
Find more information on www.ChatControl.eu
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ISRAELE. Le inchieste “indipendenti” che autoassolvono e il doppio standard della giustizia
@Notizie dall'Italia e dal mondo
Sono molto rari i casi in cui, in seguito all'apertura di un'inchiesta per omicidi o abusi perpetrati dai propri militari a danno dei palestinesi, seguano condanne o punizioni. La situazione cambia quando le vittime hanno
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L’export militare fa parte della politica estera del Paese. Il gen. Portolano fa il punto sulla legge 185
[quote]La competitività dell’industria della difesa si misura in campo internazionale, anche in considerazione del fatto che circa il 70% del fatturato del settore è legato alle esportazioni. Muoversi in maniera proattiva sul mercato internazionale è la chiave per rimanere
In Cina e Asia – Summit Biden-Marcos-Kishida: "Serie preoccupazioni per il comportamento della Cina nel Mar cinese meridionale”
@Notizie dall'Italia e dal mondo
I titoli di oggi: Summit Biden-Marcos-Kishida: “Serie preoccupazioni per il comportamento della Cina nel Mar cinese meridionale” Cina, secondo uno studio la disparità di genere è aumentata dopo la pandemia Cina capofila nella produzione di
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Taiwan Files – Che cosa significa l’incontro tra Xi Jinping e Ma Ying-jeou
@Notizie dall'Italia e dal mondo
Per la prima volta dal 1949, un leader o ex leader di Taipei mette piede a Pechino. Il secondo incontro tra il "signor Ma" e il segretario generale del Partito comunista ha diversi obiettivi e livelli di lettura: un'analisi. Intervista a Hsiao Hsu-tsen, direttore della fondazione di Ma. Lai
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Kishida, Marcos e la rete asiatica di Biden
@Notizie dall'Italia e dal mondo
Inedito summit trilaterale a Washington con Giappone e Filippine. Gli Usa provano a rafforzare il proprio sistema di sicurezza in ottica anti cinese, Trump permettendo
L'articolo Kishida, Marcos e la rete asiatica di Biden proviene da China Files.
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A Beginner’s Guide to the Fediverse, for Threads Users
If you’re reading this, chances are, you’re brand new to the idea of the Fediverse, and are just now hearing about it. Someone may have tried to explain it to you in the comments, saying “it’s like email, but social!”, leaving you no closer to deducing what it even means. Don’t worry – we’re here to help you go through the concepts, step by step, without making anything complicated.
Table of Contents
- The Basic Idea
- Interacting with the Fediverse from Threads
- Can my Threads account connect to the Fediverse?
- So, I can’t follow anyone not on Threads?
- Is there a way to see Fediverse replies to my post?
- Do I have control over which servers my posts go to?
- Joining the Fediverse Outside of Threads
- Do I have to start my own server?
- Do you have resources for Mastodon?
The Basic Idea
What is the Fediverse?
The Fediverse (Federation + Universe) is an open communication network, built on top of the Web, where individual sites can talk to each other. A person on one site can follow someone else on another, and interact with them in a way that’s pretty similar to traditional social media.
An Easy Example
To make it even simpler: there was a time in the mid-2000’s where Facebook started to overtake Myspace in terms of popularity. For a while, it was common to have half of your friends in one place, and half of your friends in the other. Your Myspace friends couldn’t use Myspace to talk to their Facebook friends. There’s just no way to make those services talk to each other.
Tom and Mark could never follow each other this way.
At first, this seems kind of obvious. Well, duh, of course that’s not going to work! There’s no way for either site to connect or even understand each other. But if you think about it, there’s no real reason that services can’t talk to each other. They just need a common language and shared understanding to work.
That’s basically what ActivityPub is designed to do.
Wait, what is ActivityPub?
ActivityPub is what we call a federation protocol. Federation is the way that servers in this network talk to each other, and a protocol is just the shared language they use to make sense of each other. ActivityPub is just one effort to make this thing work – there have been others in the past, like OStatus or Zot, and there are other approaches currently in use, like the AT Protocol that Bluesky uses.
Left: Mastodon, Right: Pixelfed. People on either app can talk to each other!
Without getting too into the weeds: ActivityPub is designed around making different kinds of platforms capable of talking to each other.
Mastodon, for example, bears a passing resemblance to Twitter. Pixelfed looks a lot like Instagram. People on each platform can talk to each other and see each others’ stuff with very little friction. Mastodon users can even watch PeerTube videos from their timeline, and listen to Funkwhale music!
Left: watching a PeerTube video from Mastodon. Right: Listening to a Funkwhale track from Mastodon
It turns out that this is a really powerful idea! It’s possible to tear down walls between platforms, and with this new shared understanding, talk to each other natively.
Interacting with the Fediverse from Threads
The Fediverse is a big, big world: it spans nearly 20,000+ individual servers, the majority of which connect in some way, shape, or form. It can be exciting to explore, but navigating it can take some getting used to.
Can my Threads account connect to the Fediverse?
Kind of. Fediverse integration for Threads is still in Beta, and is mostly one-way at the moment. What this means is that people across the network can see your posts, and they can send likes back to you, but you can’t follow anybody or see their comments yet.
Left: The President’s Threads account, as seen on Threads. Right: the same account, as seen on Mastodon.
Mastodon and the rest of the Fediverse are capable of following Threads users that have the integration turned on, provided that the Mastodon server operators haven’t blocked Threads. A lot of people are uncomfortable with the idea of Meta being part of an open network, and some servers have blocked Threads completely.
So, I can’t follow anyone not on Threads?
Not at the moment. Fediverse users can follow your Threads account, see and boost your posts, and like them.
It’s kind of a weird choice on Meta’s part to do the integration this way, but it’s likely they wanted to prioritize broadcasting before they dug into the messier business of receiving.
Is there a way to see Fediverse replies to my post?
Actually, yes! It’s a workaround for the moment, but you can look up your profile on Mastodon to see the Fediverse replies. Mastodon.social currently lets you do this, and doesn’t require an account.
Copy and paste your Fediverse username into the search form on Mastodon, and your Threads account will show up!
Keep in mind, this is an imperfect solution. This view simply shows you the responses that specific Mastodon server knows about. There are a number of servers that either don’t connect to each other, or don’t keep every reply on hand.
Do I have control over which servers my posts go to?
Privacy controls on Threads are still a bit limited, but it’s possible to block specific Fediverse users under Settings > Privacy > Block Users in the Fediverse.
Currently, it doesn’t look like there’s a way to block entire servers.
Joining the Fediverse Outside of Threads
After opening up sharing with the Fediverse from your Threads account, you might be curious about trying it out for yourself.
There’s a lot of cool stuff to do – which is why a big part of our site is dedicated to writing about the subject. Here’s a handful of questions that we’ve seen from Threads users already.
Why would I want to try the Fediverse elsewhere?
There are a couple of benefits that makes the wider network worth exploring. Let’s dig in!
Greater User Control
The Fediverse typically provides more control to end users regarding what they see, who they connect to, and how they share content online.
While you are still beholden to the admin of your server and the Terms of Service there, you’re far less likely to see a company like Meta restricting your articles, if you’re not on their servers. You can do your community, your way.
Tons of Communities
As a network, the Fediverse is a medley of different platforms, communities, and mediums. There are thousands of servers connected to each other, featuring academics, researchers, authors, musicians, artists, comedians, and more.
Diverse Experiences
The Fediverse already has analogs of most popular social networks:
- YouTube
PeerTube
- Grooveshark
Funkwhale
- Twitter
Mastodon
- Instagram
Pixelfed
- Reddit
Lemmy
- VK
Smithereen
- Goodreads
Bookwyrm
- Twitch
Owncast
There are also a lot of platforms that don’t have a direct thing to compare to, like Hubzilla, Misskey, and Emissary.
A lot of people are out there building the experiences they want to see, while plugging into a network that’s constantly getting bigger. A huge selling point is that they can work together.
Unique Apps
Out of all the Fediverse platforms out there, Mastodon currently has the most mobile apps. There’s a huge amount of variety – just look at all these!
Do I have to start my own server?
You don’t! While a lot of people do end up running their own servers, it’s never a requirement for participating. There are lots of community-run servers for just about every platform in the space.
Do you have resources for Mastodon?
We do! Here’s a comprehensive guide on Mastodon, with a ton of tips and insights on how to use the network to your advantage.
The Newcomer’s Guide to Mastodon, from a Crusty Old-Timer
wedistribute.org/2023/07/masto…
I have a question not listed here!
No problem! This is a living document, and we’re here to update the list as new things get asked. Comment below, or reply to us on Threads, and we’ll send a response and update this piece!
The post A Beginner’s Guide to the Fediverse, for Threads Users appeared first on We Distribute.
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IFTAS Publishes DSA Guide for the Fediverse
IFTAS, the Trust & Safety organization dedicated to the Fediverse, published a guide on the EU’s Digital Services Act earlier this week. The guidance is primarily geared towards instance admins and moderation teams in the Fediverse, and spells out policy obligations for compliance.
If your server has member accounts in the EU, or is publicly viewable in the EU, your service is most likely impacted by this regulation, even if you are not based or hosted in the EU.
IFTAS BLOG
Despite the fact that there are now new considerations in place for people who run Fediverse instances, there are a number of positive outcomes here:
- Most Fediverse servers are relatively small communities, and likely fall under the designation of “Small and Micro Enterprises” – if your server doesn’t employ 50 or more people, and doesn’t take an annual income of over 10 million Euros, you’re probably in this designation. Compared to Very Large Online Platforms, your obligations are fewer in comparison.
- Services are not considered liable for content unless they have been notified of its presence. Failure to take said content down is where the liability starts
- Platforms are not held liable for proactively searching for and removing illegal content.
Big Takeaways
Most of what’s listed in EU DSA requirements come across as simple, common sense, and already-adopted practices. The report published by IFTAS provides suggestions for best practices, and even includes templates for the bare minimum requirements for admins to use.
The biggest changes admins need to be aware of mostly relate to accountability: servers need to assign an EU representative for compliance, need to report on malicious content to local authorities, and needs to provide a notice mechanism (such as email) to inform suspended or banned users of a service of the action taken, as well as the reason.
On the matter of being required to assign an EU-based representative for compliance, IFTAS states the following:
If your service is accessible to users in the EU but you don’t have an establishment there, you’re required to designate either a legal or natural person as your legal representative within one of the Member States where you offer services.Your legal representative will act on your behalf for interactions with the EU’s Member States’ authorities, regarding compliance with and enforcement of the DSA. You must notify the Digital Services Coordinator in the Member State of your representative’s name, postal address, email address, and telephone number. Ensure this information is public, easily accessible, accurate, and regularly updated. Most legal representative services do not offer an affordable option for donation-driven services.
IFTAS is researching ways to offer this service, but in the meantime, we strongly recommend you ensure you have added a designated contact for authorities to reach you
This will probably be the biggest hurdle for instance operators in the short term, as many instances are roughly the same size as a community group or forum, in terms of users. This is a new consideration for a lot of admins, and not necessarily one that anybody’s given thought to in the past fifteen years.
Regardless, IFTAS has produced a valuable service with lots of insight, advice, and examples for server admins. Hopefully, this will serve as a benefit to the Fediverse as many attempt to navigate compliance for the very first time.
The post IFTAS Publishes DSA Guide for the Fediverse appeared first on We Distribute.
Il totalitarismo fascista, di Tarquini l’ottava lezione della Scuola di Liberalismo 2024
[quote]“Il totalitarismo fascista”, a cura della professoressa Alessandra Tarquinio, è il titolo dell’ottava lezione della Scuola di Liberalismo 2024, che si è svolta questa sera nell’Aula Malagodi della Fondazione Luigi Einaudi. “Abbiamo diverse
Dopo 75 anni, ecco una nuova agenda per la sicurezza transatlantica. Parla l’amb. Sessa
[quote]Dopo 75 anni comprendiamo la lungimiranza della Nato. Con queste parole il Presidente della Repubblica, Sergio Mattarella, ha rimarcato pochi giorni fa l’anniversario della nascita dell’Alleanza Atlantica. Di fronte alle crescenti sfide per il Patto, e in vista
Missioni e priorità strategiche. Le linee guida di Figliuolo
[quote]In un’udienza alla Camera il generale Francesco Paolo Figliuolo ha descritto le varie missioni internazionali in cui le forze armate sono attualmente impegnate analizzando il loro impatto dal punto di vista strategico e di economia di forze. In apertura il generale ha celebrato l’importanza dell’Alleanza Atlantica nel
Ministero dell'Istruzione
#PianoEstate, il Ministro dell’Istruzione e del Merito Giuseppe Valditara ha firmato il decreto che stanzia 400 milioni di euro per finanziare attività di inclusione, socialità e potenziamento delle competenze per il periodo di sospensione estiva del…Telegram
SUDAN. Un anno di guerra con oltre 16.000 morti e milioni di sfollati
@Notizie dall'Italia e dal mondo
Continua l'esodo di migliaia di persone disperate che stanno fuggendo dal paese "come se l'emergenza fosse iniziata ieri", secondo quanto riferito dalle Nazioni Unite.
L'articolo SUDAN. Un anno di guerra con oltre 16.000 morti e milioni di sfollati proviene da Pagine
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Ministero dell'Istruzione
🌊 Oggi, #11aprile, è la Giornata Nazionale del Mare e della Cultura Marinara. Quest’anno il #MIM e il Corpo delle Capitanerie di Porto - Guardia Costiera celebrano l’evento a Reggio Calabria.Telegram
Ministero dell'Istruzione
🌊 Oggi, #11 aprile, è la Giornata Nazionale del Mare e della Cultura Marinara. Quest’anno il #MIM e il Corpo delle Capitanerie di Porto - Guardia Costiera celebrano l’evento a Reggio Calabria.Telegram
Hanno deciso la data della conferenza sulla pace in Ucraina. Si terrà in Svizzera a metà giugno, esattamente il 15 e 16 giugno presso un hotel di lusso come annuncia il governo svizzero. Inoltre, sempre lo stesso governo, attraverso un comunicato stampa ci fa sapere questo: "le condizioni per una conferenza che dia impulso a un processo di pace sono state sufficientemente soddisfatte. Il primo passo sarà quello di sviluppare un'intesa comune tra gli Stati partecipanti sul percorso per una pace globale, giusta e duratura in Ucraina". A quanto pare alla conferenza potrebbe partecipare anche il presidente degli Stati Uniti Joe Biden oltre a tutta l'armata brancaleone di satelliti e servi occidentali. Piccolo appunto: non ci sarà la Russia. Hanno fatto in modo che non partecipasse. Con chi la dovrebbero fare la pace quindi? Con mia sorella? Dargli dei sottosviluppati è diventato addirittura un complimento per questi personaggi...
T.me/GiuseppeSalamone
DEF LEPPARD PYROMANIA
Def Leppard Pyromania
Def Leppard Pyromania: ascoltandolo si capisce in maniera molto netta ed importante la grandezza di questo gruppoIn Your Eyes ezine
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Pirate lawsuit: German Regional Court refuses to rule on legality of voluntary chat control scanning of private messages
Shortly before the European Parliament is to extend the voluntary chat control bulk scanning of private messages by US services such as Facebook, Instagram, or Gmail by two years, the Regional Court of Kiel rejected in first instance a lawsuit filed by Pirate MEP Patrick Breyer to stop the scanning by Meta. The court reasoned cited formal grounds, suggesting that Mr. Breyer could avoid chat control by manually activating end-to-end encryption in his Facebook chats. Additionally, it held that Mr. Breyer could “not pursue a political campaign … in the context of civil proceedings”. Mr. Breyer has announced that he will appeal the decision:
“I am now appealing to the Higher Regional Court to push Meta to encrypt chats by default and to stop the indiscriminate chat control scanning by other providers as a violation of our right to digital privacy of correspondence. During the trial, Zuckerberg’s Meta group did everything in its power to prevent a ruling on the legality of its arbitrary bulk scanning. They will not succeed in the long term.” Mr. Breyer also refers to the pending, parallel lawsuit brought by a victim of child sexual abuse before the Passau Regional Court, which is supported by the Gesellschaft für Freiheitsrechte (Society for Civil Liberties).
“It makes me furious that private US corporations want to self-police our personal messages. This Big Brother attack on our mobile phones, private messages, and photos using error-prone algorithms is as if the post office opened and scanned all letters – ineffective and illegal. Victims of child sexual abuse have long criticised the fact that bulk chat control scanning harms them by destroying safe spaces for self-help, therapy, and counselling. Flooding our already overburdened police investigators with oftentimes false machine denunciations and thereby reducing capacities for targeted investigations against the people committing the abuse has nothing to do with efficiency. Organised ‘child porn rings’ do not use unencrypted messenger services. The main consequence of chat control is the mass criminalisation of young people because of careless chat messages they sent or consensual sexting – which is the opposite of child protection”. Mr. Breyer refers to German police crime statistics published yesterday, according to which almost 40% of suspects for “child pornography” offences last year were minors.
Meanwhile, the EU interior ministers are discussing a globally unique follow-up regulation (Chat Control 2.0), which is intended to make chat control mandatory and destroy secure end-to-end encryption.
Patrick Breyer’s information portal on chat control
📌 Il #MIM in collaborazione con il #MIC e il #MAECI promuove anche per questo anno scolastico i Concorsi "Quando i ragazzi ci insegnano", dedicato alle scuole secondarie di II grado, e "BooktuberPrize", dedicato alle scuole secon…
Ministero dell'Istruzione
#NotiziePerLaScuola 📌 Il #MIM in collaborazione con il #MIC e il #MAECI promuove anche per questo anno scolastico i Concorsi "Quando i ragazzi ci insegnano", dedicato alle scuole secondarie di II grado, e "BooktuberPrize", dedicato alle scuole secon…Telegram
American Spanish dubbing
American Spanish dubbing. Latin American dubbing. American Spanish dubbing studio -
American Spanish dubbing. American Spanish dubbing studio. Latin American dubbing. American Spanish dubbing services. Latam dubbingLOCUTOR TV LOCUTORES: SPANISH VOICE OVER
La Turchia vara un embargo economico parziale verso Israele
Oggi il Ministro del Commercio turco ha annunciato che Ankara limiterà l’esportazione di una serie di beni nei confronti di Israele fino a quando Tel Aviv non proclamerà il cessate il fuoco e permetterà l’entrata di «un flusso sufficiente e ininterrotto» di aiuti umanitari nella Striscia di Gaza. La notizia è stata condivisa sull’agenzia di stampa governativa turca Anadolu Agency, che riporta che tra i prodotti che vedranno restrizioni nell’esportazione figurano alluminio, acciaio, cavi elettrici, materiali di costruzione, carburante “e altri materiali”. Il Ministro turco ha inoltre chiamato «tutti i membri della comunità internazionale a fare la loro parte» perché Israele rispetti la legge internazionale.
L'Indipendente, informazione senza padroni ✍️ Abbonati per sostenere il nostro lavoro e avere accesso a tutti i nostri servizi. www.lindipendente.online/abbonamenti
imolaoggi.it/2024/04/09/pentag…
imolaoggi.it/2024/04/08/renzi-…
Come si applica il Digital Services Act al Fediverso? Una guida di IFTAS cerca di affrontare l'argomento per gli amministratori di istanza
@IFTAS è lieta di annunciare la disponibilità pubblica della loro Guida DSA per i servizi decentralizzati , una guida pratica per servizi piccoli e micro soggetti alla legge sui servizi digitali dell'UE.
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paga o ok": ecco come funziona: Perché sempre più siti web vi fanno pagare per la vostra privacy
Come funzionano i sistemi di pagamento o consenso e quali sono i problemi? Max Schrems ci spiega tutto in questo video esplicativo
mickey09 April 2024
Newsmast Foundation ha pubblicato uno studio sull'uso di #Mastodon
L'argomento è lo scambio di informazioni e conoscenza su argomenti (per esempio politica, ambiente, tecnologia) e l'utilizzo (frequenza, quantità di post) da parte degli utenti
Grazie a @gualdo :privacypride: :cc: per la segnalazione
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Dignitas infinita per Purgatorium digitale
Riportiamo alcune nostre considerazioni sui capitoli conclusivi, dedicati all’impatto delle tecnologie digitali (Violenza digitale) sulla dignità umana, della “Dignitas infinita circa la dignità umana”, ossia la dichiarazione del Dicastero per la Dottrina della Fede, presieduto dal Cardinale Víctor Manuel Fernández. Sebbene condividiamo le preoccupazioni verso una tecnologia digitale…
Pirates call for a halt to plans for the EU health data space
The lead committees of the European Parliament, LIBE and ENVI, are to give their final nod to the regulation on the creation of a “European Health Data Space” (EHDS) tomorrow. According to this regulation, information on all medical treatment, including vaccination status, medication and pregnancies, laboratory and discharge reports, is to be stored digitally for all patients – including privately insured patients who are currently not covered by the electronic patient file in Germany. These files will be accessible to a large number of organisations throughout Europe. As shadow rapporteur and co-negotiator of the regulation for the Committee on Home Affairs (LIBE), Pirate Party MEP Dr. Patrick Breyer, warns of a loss of control by patients over sensitive health data and a loss of medical confidentiality.
“Information about our physical and mental health is extremely sensitive. If we cannot rely on this information being treated confidentially by our doctors, we may no longer seek treatment and may even increase the risk of suicide. The EU is allowing the most sensitive patient files to be accumulated, networked and passed on without ensuring that patients have control and self-determination over their data. ‘Anything goes, nothing has to’ is not an approach that patients can trust. Without trust, a European Health Data Space cannot work. According to surveys, more than 80% of EU citizens want to decide for themselves about the sharing of their patient records. The majority of them want to be asked for consent. The EU deal is far from this. It betrays the interests and will of patients in order to sell their data to Big Tech and pharmaceutical giants. We Pirates strongly reject the disenfranchisement of patients that this regulation entails.
A Europe-wide obligation to use electronic patient records was prevented, among other things, thanks to my initiative. According to Article 8h and Recital 13a of the Regulation, the German and Austrian right to object to the establishment of an electronic patient file has been preserved. In the event of an objection, the mandatory information will only be stored by the treating doctor. I myself will object to this electronic patient file so as not to lose control over my health data. However, we know that very few patients who object to external access to their data actually go through the complicated objection procedure.
Anyone who does not object to the electronic patient file or its analysis as a whole will probably also inevitably allow cross-border access to it by foreign practitioners, researchers, and governments. The right to object specifically to cross-border data access planned by the German government is not provided for in the regulation in a legally secure manner. This is contrary to the interests and wishes of patients, only a minority of whom, according to opinion polls, want cross-border access to their patient records across Europe. Moreover, it does not come close to doing justice to the sensitivity of health data, which ranges from addictions, mental disorders, and abortions to sexually transmitted diseases and reproductive disorders.
Furthermore, the regulation is designed to maximise the exploitation of our personal health data and does not serve the interests of patients. Contrary to the European Parliament’s original position, for example, sensitive health data does not have to be stored in Europe, meaning that non-European storage in US cloud services, for example, is also permitted. The EU Parliament has also abandoned its call for independent certification of the security of European health data systems.
The EU regulation does not require Germany to protect health data any better than the German government has decided. In future, doctors treating patients throughout Europe will be able to view their entire patient file without their consent – unless they explicitly object. In future, health ministries and health authorities, universities, technology companies, and the pharmaceutical industry will also have access to anonymised and personally identifiable (only pseudonymised) patient files throughout Europe without the patient’s consent – unless the patient expressly objects. In Germany, there is no right to object to the disclosure of medical register data records and billing data records. Patients are only asked for their consent before their genetic data is accessed, but not for information on psychological and addiction therapies, abortions, sexual, and reproductive disorders. For us Pirates, patient control over their data and the protection of medical confidentiality take centre stage, so that access to treatment records by third parties is only acceptable after obtaining patient consent.“
Anja Hirschel, medical computer scientist and top candidate of the Pirate Party for the 2024 European elections, adds: “Centralised data storage awakens desires in a wide variety of directions. However, this does not only entail hacker attacks, but also so-called ‘secondary use’. This refers to access that is to be granted in full for research purposes. The patient data is then to be passed on to third parties. From a data protection perspective, even the centralised collection of data is problematic, and at least an opt-in procedure (active consent) is the right way to go. This would allow each individual a certain degree of decision-making autonomy over their personal data. However, if not even an opt-out procedure (active objection) is established, this ultimately means the abolition of the confidentiality of all medical information. And this despite the fact that doctors in Germany are rightly subject to professional confidentiality in accordance with Section 203 of the German Criminal Code (StGB), as are, among others, lawyers. This protection of our most private information and the right to confidential care and counselling are now at stake.“
The German government supports the EU plans. In contrast, the European Consumer Organisation BEUC and the data protection network EDRi have criticised them.
RECENSIONE : BIG PAWS – WORST COAST
Un bel dischetto per gli amanti del genere, una spanna sopra a un sacco di roba attuale, ma pure del passato. Lo trovate in Cd da Flamingo Records! @Musica Agorà
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BIG PAWS - Worst Coast 2024
Esclusivo da Flamingo Records: Big Paws offre un dischetto unico nel suo genere. Scoprilo ora!In Your Eyes ezine
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Raphael Pallavicini
in reply to Informa Pirata • • •Informa Pirata
in reply to Raphael Pallavicini • •@Raphael Pallavicini
In effetti la ripubblicazione automatica del post dal mio canale telegram sembra che abbia fatto un po' di confusione...
Sul canale telegram ho pubblicato prima la segnalazione di due interviste di quel cesso di Byoblu e poi ho inviato il disclaimer
Per quello che mi riguarda, ti posso dire che ho sempre evitato di condividere materiale da quel canale di disinformazione, non solo per una questione di igiene della comunicazione, ma anche perché pubblicare quella roba attira un pubblico con cui non voglio avere a che fare.
Non mi sembra affatto che sia così, Ma tu hai in mente qualche esempio?