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I rapporti che emergono da Tigray nelle ultime settimane dipingono un quadro cupo. Dopo aver sofferto per due anni di operazioni militari e occupazioni di terra bruciata, che coinvolgono atrocità diffuse e guerre d’assedio, le famiglie in tutta la regione del Tigray stanno lottando per sopravvivere. Questo dovrebbe essere un momento di guarigione, recupero e ricostruzione. Invece, è un momento di incertezza, disperazione e fame.
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Per mesi, la leadership senior di USAID e WFP hanno ignorato pubblicamente la ben documentata discesa del Tigray nella fame di massa, che è stata innescata dalla loro controversa decisione di sospendere l’assistenza alimentare a marzo. Oggi, le notizie di decessi legati alla fame provengono da tutta la regione, con più hotspot scoperti in ogni area accessibile del Tigray, comprese le zone nord-occidentali, centrali, orientali, sudorientali e meridionali.
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Sorprendentemente, non sembra esserci alcun monitoraggio sistemico e continuo delle morti per fame in tutto il Tigray. L’unico rigoroso studio sulla mortalità in Tigray condotto da quando è iniziata la sospensione degli aiuti, si è concluso a luglio. In questa valutazione, i medici del Tigray’s Health Bureau, del Tigray Health Research Institute e dell’Università di Mekelle hanno indagato sui decessi di circa il 10% della regione. Hanno determinato che più di 1.300 persone erano morte per cause legate alla fame dopo l’accordo sulla cessazione delle ostilità. Secondo i risultati preliminari, il tasso di mortalità mensile è aumentato bruscamente dopo l’inizio della sospensione di marzo ed è stato più alto nell’ultimo mese di copertura. Nei mesi che seguirono, il Tigray entrò nella sua tradizionale stagione magra e poi sperimentò un significativo fallimento delle colture a novembre a causa della mancanza di forniture agricole e siccità.
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Lo studio è stato citato dal rappresentante Brad Sherman nell’audizione della scorsa settimana, “Etiopia: Promise o Perils, Lo stato degli Stati Uniti. Politica”, che è stata tenuta dalla sottocommissione per gli affari esteri della Camera degli Stati Uniti sull’Africa. Questa udienza è stata la prima tenuta in Etiopia sotto la presidenza del repubblicano John James del Colorado, che ha preso l’amministrazione Abiy Ahmed per svolgere la lunga e crescente lista di atrocità e crimini commessi sotto la sua guida. Il presidente James ha concluso senza mezzi termini:
“Se devo essere onesto, è sempre più difficile vedere dove si trova la promessa”.
Il deputato Sherman tecnicamente non fa parte della sottocommissione, ma alla fine dell’udienza gli è stato permesso di interrogare l’inviato speciale Mike Hammer e il vice amministratore aggiunto dell’USAID, Tyler Beckelman, davanti a una camera in gran parte vuota. In risposta ad una domanda sull’impatto e sulla ripresa dell’assistenza alimentare, Beckelman ha cercato di rassicurare il deputato che la sua agenzia stava ancora salvando vite in Etiopia, sostenendo che:
“Molta attenzione è stata posta sulla pausa negli aiuti alimentari… Gli aiuti alimentari sono solo una componente dell’insieme complessivo di attività umanitarie che forniamo alla popolazione etiope e cose come l’alimentazione nutrizionale per i bambini malnutriti e le cure per i bambini sotto i cinque anni continuato per tutto il periodo della pausa”. [Udienza della Camera degli Esteri, 30/11/23, 1:17 ]
Beckelman ha ragione nel dire che il supporto nutrizionale salvavita viene ancora fornito ai bambini in Etiopia. Nei sei mesi successivi alla sospensione degli aiuti alimentari nel Tigray alla fine di marzo, il numero di bambini sotto i cinque anni ricoverati per malnutrizione acuta grave (SAM) in Etiopia è diminuito solo leggermente. Tuttavia, per i bambini del Tigray, menzionati espressamente dal rappresentante Sherman, l’accesso a questo aiuto nutrizionale è quasi del tutto evaporato.
Per dirla in altro modo, un membro del Congresso degli Stati Uniti ha chiesto informazioni sulle morti per fame nel Tigray e il vice amministratore delegato dell’Africa Bureau dell’USAID ha risposto con una dichiarazione molto fuorviante che lasciava intendere che la rete di sicurezza per neonati e bambini piccoli che muoiono di fame nel Tigray non era stata tolta loro nel momento peggiore possibile. È importante che l’USAID difenda la decisione di sospendere gli aiuti, ma senza avanzare affermazioni che oscurino la reale portata della sofferenza del popolo tigrino.
Il grafico seguente illustra il fallimento dello sforzo umanitario internazionale volto a salvare la vita dei bambini del Tigray che stanno morendo di fame dopo otto mesi di sospensione degli aiuti alimentari. Mostra quanti bambini sotto i cinque anni sono stati ammessi ogni mese per malnutrizione grave in regioni selezionate dell’Etiopia rispetto al livello di ammissioni quando è iniziata la sospensione degli aiuti nel Tigray. Il ricovero per il trattamento della SAM è l’ultima linea di difesa contro neonati e bambini piccoli che muoiono di fame. È importante notare che ogni mese avvicina il Tigray alla stagione magra agricola e si allontana dall’ultima volta in cui qualcuno ha ricevuto assistenza alimentare esterna, con conseguente aumento della domanda di trattamento SAM.
In tutte le altre regioni di questo grafico i servizi nutrizionali vengono ancora forniti, ad eccezione del Tigray. Per i bambini del Tigray che sono stati sfollati, il trattamento per la SAM semplicemente non esiste al di fuori di un paio di città nella zona nord occidentale. A giugno, una valutazione dell’OIM ha rilevato che c’erano 140.993 bambini sotto i cinque anni sfollati nel Tigray. Secondo le misurazioni della circonferenza del braccio medio-superiore (MUAC) del più recente sondaggio nutrizionale SMART+ raccolto ad agosto, oltre il 35% dei bambini sfollati soffriva di malnutrizione acuta grave (5,7%) o moderata (30%). Ciò significa che, solo tra la popolazione sfollata, ad agosto circa 50.000 neonati e bambini piccoli morivano di fame.
Secondo il SAM Management Update del Nutrition Cluster, nei due mesi successivi all’indagine SMART+, settembre e ottobre, solo 210 bambini sfollati hanno ricevuto cure per la SAM . Il numero totale di bambini ammessi con SAM è di 207 nella zona nord-ovest e 3 nella capitale di Macallè. Nessuno dei 31.000 bambini nella zona Centrale, nessuno dei 16.000 bambini nella zona Orientale, nessuno degli 11.000 bambini nelle zone Sud e Sud-Est ha avuto accesso al trattamento per la SAM. L’unico tipo di assistenza disponibile per i bambini sfollati era il trattamento ambulatoriale; nessun bambino sfollato ha ricevuto cure speciali (ricovero) per la SAM.
Per fare un confronto, nei due mesi precedenti la sospensione degli aiuti alimentari (febbraio e marzo) quasi 1.300 bambini sfollati hanno ricevuto cure per malnutrizione grave. L’accesso alle cure per i bambini sfollati sotto i cinque anni è diminuito dell’84% a causa del protrarsi della sospensione degli aiuti.
Sarebbe dovuto accadere il contrario. Se l’USAID e il WFP non fossero stati pronti ad aumentare l’assistenza nutrizionale per soddisfare un crescente bisogno, la sospensione degli aiuti alimentari non avrebbe mai dovuto essere presa in considerazione. Non dopo due anni di fame armata. Non con l’avvicinarsi della stagione magra. Non con così tante vite innocenti in gioco.
Quando le persone parlano di “controllo del danno”, il danno a cui si riferiscono è reputazionale. È qualcosa che fanno le celebrità o le aziende di fronte a uno scandalo. Non è mai coraggioso, ma spesso accettato. Non potrà mai essere una pratica accettabile per le organizzazioni umanitarie o i governi quando le persone che dovrebbero servire muoiono per mancanza dei beni e dei servizi che dovrebbero fornire. Le agenzie umanitarie e i governi devono adottare misure per controllare i danni causati e della crisi, alle persone che dipendono da loro per sopravvivere.
L’impatto della sospensione umanitaria era del tutto prevedibile. Avrebbe dovuto essere evitato, ma ormai è troppo tardi. Ciò di cui il Tigray ha bisogno ora è che le agenzie umanitarie e i funzionari inizino a controllare i danni che hanno causato. I donatori sono troppo disposti ad accettare che le principali agenzie umanitarie che operano nel Tigray dedichino maggiori sforzi alla crisi reputazionale più che al controllo della crisi e dei danni che hanno arrecato per poca trasparenza e la loro sospensione delle attività.
La popolazione del Tigray ha bisogno che i donatori chiedano alle agenzie umanitarie di fornire dati accurati sulle condizioni sul campo; adottare trasparenza su piani, decisioni e operazioni; distribuire assistenza alle persone bisognose. Qualunque cosa di meno costituisce una grave distorsione dei principi umanitari fondamentali che crea le condizioni per una ripetizione del tracollo totale a cui stiamo assistendo proprio ora nel Tigray.
FONTE: tghat.com/2023/12/08/starvatio…
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In future, the European Court of Justice will proactively and systematically publish the letters and arguments submitted by the parties to proceedings on its website after a judgement has been delivered. An exception applies if the author of pleadings objects, but in this case there is a right to access the information via the EU Commission upon request. This is the result of the negotiations on the reform of the CJEU Statute between the EU Parliament and the EU Council, in which Pirate Party MEP Patrick Breyer was involved. The new transparency rule applies to all questions referred to the ECJ by national courts (“preliminary ruling procedures”). Following the initiative of Breyer, who is himself a judge by profession, the European Parliament had called for public access to the pleadings and arguments exchanged in court proceedings.
“With the systematic publication of submissions and arguments, the European Court of Justice is becoming more transparent than ever before. This also sets standards for the national judiciaries. It is a privilege that I, as a member of the Pirate Party, was able to introduce our core value of transparency into the negotiations and successfully implemented it thanks to the support of my colleagues. Pressure from civil society also helped.
After landmark judgements with far-reaching consequences, the public has a right to know and discuss the positions our governments and institutions advocated for. I am sure we will be surprised by some of the positions our own governments take. In a democracy where freedom of the press reigns, it must be possible to hold the powerful accountable for their behaviour in court. At a time when the EU and its Court of Justice are facing a crisis of confidence, transparency creates trust.
Of course, the new transparency rule with its restrictions and reservations does not yet fully meet our expectations. In particular, we will be keeping a close eye on whether member states with deep-rooted secrecy culture will systematically abuse their right to object to publication. Nevertheless, the introduction of the principle of proactive transparency in the EU judiciary is a milestone and a paradigm shift.”
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AT&T, Verizon, and T-Mobile’s race to deploy 5G has failed to realize its flashiest outcomes while saddling carriers with debt and removing a competitor from the market.Allison Johnson (The Verge)
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In casa abbiamo Eolo 100D/20U mbps (se fosse ancora per TIM dovrei usare il telegrafo) e ci troviamo bene così.
Nella vita di tutti i giorni una banda a 100 mbps simmetrica è più che sufficiente per coprire tutte le esigenze domestiche. Voler spingere la gigabit nelle grandi città e lasciare i paesini tagliati fuori, con connessioni ridicole, è pessimo. Poi però vedi i dirigenti delle varie compagnie (TIM in primis) piangere sui media, perché il settore delle telecomunicazioni è quello con la crescita più anomala, con l'abbassamento dei costi e l'aumento della qualità del servizio.
@prealpinux trovo esilarante poter guardare un video in 8k su uno schermo di qualche pollice, ultra HD{highly demented}... Scusate la causticità ma mi manda in bestia.. Come mettere chip nello spazzolino da denti o altri apparecchi saranno tonnellate di RAEE, che verranno riciclate per quanto possibile Nell economia circolare nella migliore delle ipotesi.. Ma sto divagando è vorrei evitare di buttare veleno in questo spazio, indi qualche respiro profondo visualizzo il mare eeeee...... relax..
Con tanta banda i DoS saranno meno efficaci?I click day funzioneranno?Scenderà il costo dell' abbonamento? Bha.. Ho già una qualche idea su chi finanzierà le infrastrutture e gli aggiornamenti ... Sa meglio che mi metto a pensare a cose pucciose 
E scusate la giornata no
Meta, the company behind Facebook, WhatsApp and Instagram, has announced significant security enhancements to its Messenger direct messaging service. In the future all personal calls and messages will be end-to-end encrypted by default. Pirate Party Member of the European Parliament Patrick Breyer, a long-time opponent of blanket chat control scanning of all private messages, comments:
“Zuckerberg’s move is a success also of my lawsuit against Meta’s voluntary chat control mass surveillance: with the gradual introduction of secure end-to-end encryption to direct messaging, Facebook and Instagram are ending their voluntary, error-prone searches in the content of our private messages and begin respecting the confidentiality of our communications.
Voluntary mass surveillance of our private communications makes no significant contribution to saving abused children or to convicting abusers, but criminalises thousands of minors, overburdens law enforcement and opens the door to arbitrary private justice by big tech industry. Voluntary chat control could never contain the amount of suspected CSAM on Zuckerberg’s platforms. Relieving the police of the flood of largely false reports frees up law enforcement capacity for targeted and undercover investigations into organised child sexual abuse, thereby really protecting children. Even without chat control mass surveillance, user reports and reports resulting of the automated scanning of public posts on Facebook and Instagram will continue to be made.
Regrettably, Zuckerberg‘s Meta continues general monitoring of users by deploying unreliable metadata analysis algorithms. We Pirates managed to force the company by way of the EU‘s Digital Markets Act to allow for cross-platform interoperability with alternative, more secure and privacy-friendly messengers in future. We will thus be able to switch to better messaging services while maintaining our contacts on Instagram and Facebook.
Without any mass surveillance, Meta could make Facebook and Instagram secure by design for children if Zuckerberg was willing to compromise on profits. Why, for example, are young people not asked, regardless of their age, if they want their photos and profiles to be publicly visible to strangers?”
The EU Parliament’s Industry Committee today approved a new EU regulation on digital identity (eIDAS 2) against the votes of the Pirates and their group. According to the law, a new digital identity app will enable EU citizens to access public and private digital services such as Facebook or Google and to pay online. The deal was approved despite IT security experts and scientists publicly warning against mass surveillance and recently countering disinformation by the EU.
“This regulation is a blank cheque for surveillance of citizens online, endangering our privacy and security online”, comments Pirate Party lawmaker Patrick Breyer. “Browser security is being undermined, and overidentification will gradually erode our right to use digital services anonymously. Mark Zuckerberg should have no right to see our ID! Entrusting our digital lives to the government instead of Facebook and Google is jumping out of the frying pan and into the fire. This deal sacrifices essential requirements the European Parliament had put forward to make the eID app privacy-friendly and secure. The EU misses the opportunity to establish a trustworthy framework for modernization and digitization. We will watch the implementation very closely.”
Pirates Mikulas Peksa and Patrick Breyer worked until the last minute to try and fix at least some of the numerous risks of the EU digital identity scheme. In a major victory, Member States will not be obliged to assign a single unique ID number to every citizen. Signing up for the eID app will be voluntary, and it will remain possible to access public and private services by other existing identification and authentication means. The app client will be open source.
„Overall though the scheme remains a blank cheque for surveillance of citizens online“, concludes Breyer. „As hundreds of scientists publicly warn and contrary to what the EU claims, web browser manufacturers could be forced to expose our securely encrypted Internet use (including intimate and sensitive activities) to government surveillance. This is an unacceptable attack on secure encryption. The eID apps can also be used to monitor our digital lives because there is no requirement of unobservability and unlinkability. The content of our eID wallets (potentially bringing together personal banking data, medical prescriptions and criminal records) could be monitored via central databases because we have no right to store documents exclusively on our personal devices.
The lure of conveniently signing in to private digital services using a single official eID app is a trap. Overidentification will gradually erode our right to use digital services anonymously which currently keeps us safe from criminal activity, unauthorised disclosure, identity theft, stalking and other forms of abuse of personal data. The eID app will not allow for multiple, truly separate user profiles which vulnerable persons rely on.
The server-side code of the eID wallet will not have to be open source, meaning the public cannot know what the code actually does and if it is safe.
In view of all this, the new EU eID app will not be trustworthy and will fail to sufficiently encourage the development of digital and eGovernment services in Europe – much to the Pirates regret.“
EU governments gave the green light yesterday to the creation of an EU Health Data Space (EHDS) which would interconnect patient data across Europe. In the meantime, lawmakers have yesterday submitted amendments to give patients a right to object to the collection of their personal health data in the new Data Space, and to ensure that patients retain control over their health data.
Firstly, 70 MEPs from S&D, Renew, Greens and Left request the following should be added to the Regulation: “Member States may provide for natural persons to have the right to object to the registration of their personal health data in an EHR system.” “Compulsory electronic health records for every citizen that are accessible across Europe would entail irresponsible risks of data theft, hacking or leaks of the most personal treatment data. It would deprive patients of any control over the collection of their illnesses and disorders,” warns Breyer. “This is nothing less than the end of medical confidentiality. Have we learnt nothing from the international hacker attacks on hospitals and other health data? If every mental illness, addiction therapy, every potency weakness and all abortions are collected in a remotely accessible data space, worried patients risk being deterred from urgent medical treatment – this can make people ill and harm their families! In the European Parliament, I will fight to give patients a choice over the collection of their health data.”
Other amendments tabled yesterday by Breyer and other MEPs concern the plan that patients would need to actively object in future in order to prevent healthcare providers and industry from accessing their treatment records. “Citizens should at least be asked orally whether they wish to object to the lifting of medical confidentiality,” explains Breyer the amendments. “For many patients who have little time or limited language skills, and for the elderly, a complicated written or electronic procedure is too burdensome to give them a real choice. International standards such as the International Code of Medical Ethics of the World Medical Association or the Helsinki Declaration on the Ethical Principles of Medical Research have so far required that the patient’s consent be obtained before their medical data is disclosed. A public opinion poll we commissioned confirms that people expect to be asked for their consent before their health data is shared. Every website asks us for consent before setting a cookie, but we shouldn’t even be asked before our health records are shared? This doesn’t effectively keep patients in control of their data.”
Background:
The EU’s Health Data Space bill is intended to oblige doctors to enter a summary of each patient’s treatment into an interconnected system (Article 7). Exceptions or a right to object are not provided even for particularly sensitive diseases and therapies such as mental disorders, sexual diseases and disorders such as impotence or infertility, HIV or addiction therapies. Patients whould only be able to object to access to their electronic patient file by other healthcare providers or industry. How this right could be exercised would be up to every Member State. According to a survey by the European Consumer Organisation BEUC, 44% of citizens are concerned about the risk of theft of their health data; 40% of citizens fear unauthorised data access.
Next Tuesday, the plenary of the European Parliament is to vote on final amendments to their negotiating mandate. The first round of negotiations between the EU Council, EU Parliament and EU Commission is due to take place as early as next Thursday. The rapporteurs want to finalise the negotiations before the 2024 European elections.
“International Free Assange day”. 7 dicembre, Roma
Giovedì 7 dicembre alle ore 15 in occasione dell'”International Free Assange day” si terrà un sit-in per la sua liberazione alle ore 15 in Largo Corrado Ricci a Roma Articolo21 aderisce all’iniziativa
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Giovedì 7 dicembre alle ore 15 in occasione dell'”International Free Assange day” si terrà un sit-in per la sua liberazione alle ore 15 in Largo Corrado Ricci a Roma Articolo21 aderisce all’iniziativa Iscriviti alla Newsletter di Articolo21 Indirizzo…Articolo21
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Cerco account GoToSocial con cui fare cose zozze 😀 (Richiesta informazioni)
Ho provato a connettermi dal mio profilo Friendica @informapirata@poliverso.org con un profilo di GoToSocial ma non ci sono riuscito
Se cerco @utente@istanza non lo trova
Se provo ad andare su istanza/@utente, Friendica me lo vede come contatto RSS
Se provo a cercare quell'accuont, non mi esce nulla. Se provo ad andare all'indirizzo istanza/users/utente Friendica me lo vede come contatto ActivityPub, ma non mi permette di seguirlo e mi dà questo messaggio di errore:
The network type couldn't be detected. Contact can't be added.
×
The profile address specified does not provide adequate information.
No compatible communication protocols or feeds were discovered.
×
The network type couldn't be detected. Contact can't be added.
Lo stesso problema l'ho avuto anche con l'istanza friendica nerdica.net
C'è per caso qualcuno che può aiutarmi a fare qualche prova connettendosi al mio account @informapirata@poliverso.org (link: poliverso.org/profile/informap…)
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Now that the EU plans for mass screening of private communications and undermining secure end-to-end encryption (chat control 2.0) have been put on ice due to a lack of majority among EU governments, the EU Commission is proposing an extension of the existing voluntary chat control regulation, which is currently set to expire on 3 August 2024, by two years. The planned fast-track procedure has not yet been communicated by the EU Commission. For Pirate Party lawmaker and most prominent opponent of chat control Patrick Breyer, who is also his group’s lead negotiator on the file, the proposal is an admission of failure:
“Proposing to continue working with the status quo is an admission of failure of the scandalous methods of Home Affairs Commissioner ‘Big Sister’ Ylva Johansson to implement authoritarian chat control in Europe.” Due to her unprecedented, radical attack on digital privacy and secure encryption, ‘big sister’ Johansson is directly responsible for the complete failure to achieve any better protection of our children from abuse. Johansson’s personal crusade for and ideological obsession with mass surveillance is blocking truly effective preventive measures, for example by requiring online services to be secure by design. Victims of child sexual abuse deserve politicians who are capable of protecting children in an effective, politically and legally feasible way – this is cross-party consensus in the EU Parliament.”
At the same time, Breyer criticises the instrument of voluntary chat control: “The Commission’s report on the supposed effectiveness of voluntary chat control has been overdue for months. No surprise: the voluntary mass surveillance of our private communications by US services such as Meta, Google or Microsoft makes no significant contribution to rescuing abuse victims or convicting producers of child sexual abuse material. It instead criminalises thousands of minors, overburdens law enforcement and opens the door to arbitrary private justice by internet companies.”
“The regulation on voluntary chat control is both unnecessary and violates fundamental rights: Social networks as hosting services do not need the regulation to screen public posts. And the error-prone NCMEC reports that result from the indiscriminate screening of private communications by Zuckerberg’s Meta will end as a result of the announced introduction of end-to-end encryption by the end of the year. The legal opinion of a former ECJ judge finds that voluntary chat control violates fundamental rights. A victim of child sexual abuse and I are taking legal action against this.”
The EU Commission intends to inform the justice and interior ministers on 4 December 2023.
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The lead committees of the European Parliament, LIBE and ENVI, have today voted in favour of the creation of a “European Health Data Space” (EHDS), which will bring together information on all medical treatments received by citizens. Specifically, the bill will oblige doctors to upload a summary of each patient’s treatment to the new data space (Article 7). Exceptions or a right to object are not provided for, even when it comes to particularly sensitive diseases and therapies such as mental disorders, sexual diseases and disorders such as impotence or infertility, HIV or drug abuse therapies. Patients would be able to restrict access to their health records, but not their creation.
“The EU’s plan to collect and interconnect records on all medical therapies entails irresponsible risks of data theft, hacking or loss. Even the most delicate therapies can no longer be administered off record in the future,” criticises Patrick Breyer, Pirate Party MEP and co-lead negotiator for the Greens/European Free Alliance in the EU Parliament’s Committee on Home Affairs. “This is nothing other than the end of medical confidentiality. Have we learnt nothing from the international hacker attacks on hospitals and other health data? If every mental illness, addiction therapy, every erectile dysfunction and all abortions are registered, concerned patients risk being deterred from seeking urgent medical treatment – this can make them ill and put a strain on their families. This digital disempowerment of patients needs to be put to a vote in plenary in December!”
Breyer, who voted against the bill today, also criticises the fact that patients would need to actively object to prevent healthcare providers and industry from using their data. “For many patients who have little time, limited language skills or education, or who are elderly, having to actively object with a certain authority or via a digital tool is too complicated in practice to give them a real choice. International standards such as the World Medical Association’s International Code of Medical Ethics or the Helsinki declaration on Ethical Principles for Medical Research require seeking patients consent before disclosing their medical information. A public opinion poll we commissioned confirms that citizens expect to be asked for their consent before their health records are being shared. Every website asks for our permission before setting a cookie, but we are not even asked before our health records are shared? This system deprives patients of real control over their data and does not deserve our trust.“
The European Parliament’s plenary is due to vote in December and can make final amendments. A survey by the European Consumer Organisation (BEUC) has shown that 44% of citizens are worried about their health data being stolen; 40% fear unauthorised access to their data.
According to the latest state of negotiations, the EU governments also want to introduce a compulsory interconnected electronic health record for everyone without any right of objection. This could be decided as early as 6 December in the so-called COREPER Committee. Trilogue negotiations between the institutions will ensue with a view of finding an agreement early next year.
In the upcoming Committee vote on creating a European Health Data Space (EHDS) on 28 November, the European Parliament wants to support the mandatory registration of every treatment of a patient in a remotely accessible Electronic Health Record. EU governments also want to endorse a compulsory Electronic Health Record for everyone, possibly as early as 6 December in the so-called COREPER Committee. Patients would be able to restrict data access, but not the electronic collection of summaries of all medical treatments.
“The EU’s planned mandatory electronic patient file with Europe-wide access entails irresponsible risks of theft or loss of the most personal therapeutical data and threatens to deprive patients of any control over the digitisation of their health data,” criticises Patrick Breyer, Pirate Party MEP and chief negotiator for the Greens/European Free Alliance group in the EU Parliament’s Committee on Home Affairs (LIBE). “Have we learnt nothing from the international hacker attacks on hospitals and other health data? If every mental illness, substance abuse therapy, every potency weakness and all abortions are compulsorily recorded, concerned patients may be deterred from seeking urgent medical treatment altogether – this can make people ill. This legislation has been designed for health industry, not to empower citizens.”
The plenary of the European Parliament is due to vote on the Committee recommendation in December and can make final amendments. A survey by the European Consumer Organisation (BEUC) has shown that 44% of citizens are concerned about the risk of health data theft; 40% fear unauthorised access to their data.
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People in Kenya have the right to access information and communicate freely online — including through messaging applications like Telegram.Access Now
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Today, the European Parliament adopted its position on the ‘right to repair’ law. The new rules will make it easier for consumers to get their defective products repaired, reducing the need to discard them. MEPs agreed that manufacturers shall be obliged to provide spare parts to independent repairers, and a digital platform shall be set up in each Member State to connect customers and repairers. The legislation also introduces rules to encourage more repairs during the warranty period instead of replacing goods. The text now moves into trilogue negotiations with the Council of the EU and the European Commission.
Patrick Breyer, Member of the European Parliament for the German Pirate Party, comments:
“Pirates support this initiative because we think users should control the tech they use every day. For IT, the requirement that updates must be reversible and shall not lead to diminished performance will be useful. But we Pirates still believe that the right to repair could go further, and would like to see this implemented in future legislation. Current laws say IT device makers must provide updates for a reasonable period of time, but they’re not required to fix known vulnerabilities quickly. That needs to change to keep us safe. The source code and tools for development of information technology should be made public so the community can take care of them when a manufacturer stops supporting a widely used product. Requiring manufacturers to enable 3D printing of spare parts in case of orphan products, as now proposed by Parliament, is a significant step in the right direction.“
Czech Pirate Party MEP Marcel Kolaja, Quaestor of the European Parliament and Member of the leading Internal Market and Consumer Protection Committee (IMCO), comments:
“The ‘right to repair’ proposal is a milestone on the way to a more circular economy. Nowadays, most of the time, it is easier for consumers to throw away broken goods than to have them repaired, even if it is only a minor damage. The result is both unnecessary spending and tons of waste that burdens the environment. Today, Europeans are estimated to lose up to €12 billion a year by throwing away goods unnecessarily, generating 35 million tonnes of waste. Both are relatively easy to prevent, which we are now aiming to do with this mandate.”
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Gert
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